Shared decision-making (SDM) is a patient-centered healthcare model fostering collaboration between patients, caregivers, and providers. For patients with generalized myasthenia gravis (gMG), SDM helps navigate complex treatment decisions while aligning care with individual preferences and values. This is particularly critical in gMG due to its diverse symptom burden and evolving therapeutic landscape.
Studies show that SDM improves decision quality, enhances patient autonomy, and reduces decisional regret. Tools like the SHARE approach guide providers through key steps: engaging patients, comparing treatment options, assessing values, making joint decisions, and evaluating outcomes.
Despite its benefits, barriers such as time constraints, inadequate patient education, and limited provider training often hinder SDM adoption. To overcome these challenges, interventions like decision aids and patient activation strategies have shown promise. While no single approach has been proven superior, training programs like the SDM-N scale can enhance provider competency and improve care quality.
In gMG management, SDM also promotes effective care coordination by facilitating communication between specialists, such as neurologists, and generalists, including PCPs, NPs, and PAs. This collaboration ensures that all members of the care team are aligned on treatment goals, enabling comprehensive, patient-centered care. By embracing SDM, providers can empower gMG patients to actively participate in their treatment, fostering better outcomes and stronger patient-provider relationships.
How do you integrate SDM into your gMG treatment planning? What strategies or frameworks have you found most effective in supporting patient involvement?
-
Sachin Panchal2moI do not have many of this particular patient population but I would refer them to specialist
-
Paola Sandroni, MAYO CLINIC HEALTH SYSTEM - MANKATO2moThere is no doubt that sharing decision making is critical in many conditions. Even when the option is only 1 is still important to give the patient the feeling Show More
