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In gMG, how do you account for the fluctuating, invisible nature of disease burden — the days patients appear fine but are managing significant fatigue, anxiety, and fear of exacerbation — in your overall clinical assessment?
  • 3w
    Listen carefully with uninterrupted conversation.
  • 1mo
    Unpredictable nature of gMG is warrants detailed discussion with the patient be better assess general well-being.
  • 1mo
    Listening to the patients voice their concerns is key
  • 1mo
    listening to what the patient has to say lets me go in the right direction for the best treatment for that patient
  • 1mo
    I spend most of the time listening to the patients that needs and their concern. Give them a chance to talk and then advise them.
  • 1mo
    Listen to patient and take time to ask about daily activities and changes since last visit.
  • 2mo
    If all else fails talk to the patient. They will usually tell you if you give them a chance
  • 2mo
    I ask the patient if today is representative of most other days - or is it better or worse. And in what way?
  • 2mo
    listening to patient symptoms and lab work to better evaluate
  • 2mo
    All autoimmune diseases are unpredictable so being able to account for disease processes is low. gMG is a disease that can mimic so many others including just an infection so diagnosis is key and then disease signs and symptoms can then be assessed and managed more quickly and tools, usually like surveys help with this process
  • 2mo
    In GMA one of the biggest assessment challenges is that disease burden is often fluctuating, episodic, and not fully visible during a clinic visit. A patient may appear relatively well during an appointment yet be experiencing substantial fatigue, activity limitation, and concern about symptom worsening in daily life.

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